Bebe

Use your words: Starting over and a review of ‘Late-Talking Children’

Use your words, part I

Before we moved from LA I requested my medical records and did the same for Xavi. It was pretty much all review except for the results of Xavi’s initial assessment with the speech language pathologist. I remember looking through PDF and seeing the raw score, the age equivalent and percentile ranking and feeling like I’d been sucker punched. I wanted to cry.

What I heard from the SLP was “Xavi should get one hour of speech therapy. He also qualifies for early intervention pre-school. Let’s set up the former and you can look into the latter.”

It was something like that. On paper the situation seemed more dire.

Xavi started speech therapy for an hour a week and attended for about six weeks before we moved. The location was close and convenient and Xavi liked playing with new-to-him toys and running around the indoor gym/playground. He was also starting to make some improvements.

In the midst of starting a new job, getting acclimated, and moving I dropped the ball when it came to continuity for Xavi’s speech therapy. I finally called the county early intervention office after his second birthday. I shouldn’t have waited so long. I assumed that with our medical records and Xavi’s initial assessment in April he’d be able to start therapy soon. Nope.

Since we’re in New York, we had to restart the process. I wanted to kick myself. I should’ve called as soon as my new insurance kicked in on my first day at the new job. As expected, it’s taken several weeks to get Xavi in speech therapy once again. In the mean time he’s taken to communicating through lots of pointing, pulling us along, nodding his head, signing and using a few words. I’d love to hear him say “‘Bye, mamá” when I leave for work, but right now a big hug, waving goodbye are enough to give me warm fuzzies.

Below is our timeline:

  • August 3ish: Initial referral, I called the early intervention office
  • August 8: Receive the early intervention parent handbook
  • August 24: Intake session with coordinator
  • September 14: Assessment with speech and occupational therapists; immediately get results which confirm that Xavi has a speech delay and qualifies for services. Devise a plan with the intake coordinator.
  • Currently: Waiting for Xavi’s first appointment with his speech therapist in a week

Aside from waiting, the process has been pretty painless. After reading Late-Talking Children: A Symptom or a Stage? by Stephen Camarata I was worried that we’d have someone who would be pushing a diagnosis that didn’t fit or advocated something that could be harmful.

I started reading Late-Talking Children in the spring. I saw it a bookstore on campus and was intrigued enough to request it from the LA Public Library. I slacked on it and only got through the first couple of chapters. I bought the e-book and finished the second two-thirds a few weeks ago.

Late-Talking Children was exactly what I was looking for. It’s easy to go online and read some parenting magazine’s short post/article about speech delay or another parent’s experience, but I wanted evidenced-based info that was also accessible. Camarata lays out the current research and what is known about late-talking children while also including anecdotes seen through his clinic at Vanderbilt University.

Pointing

While Late-Talking Children is very useful and reassuring, it also left me a bit worried and stressed. The first few chapters made me think that Xavi’s speech delay was a stage he’d grow out of rather than a symptom of something else typically linked to speech delay, particularly autism. This was probably why I got lazy and stopped reading initially. Plus, by that time Xavi was already in speech therapy and we were happy with the services he was receiving.

As I started reading more I got worried. Camarata writes about several cases where parents and their children didn’t receive the treatment they needed or clinicians/educators insisted on a certain diagnosis. He acknowledges that these instances are not the norm, but it’s still enough to make you think you’re going to need to go to battle every time you speak to a pediatrician, teacher, speech therapist or other professional who works with early intervention programs. Plus, I couldn’t help wondering about the socioeconomic aspect. I imagine it can be intimidating to argue about an IEP with teachers or clinicians if you’re not fluent in English or they talk down to you because you don’t have multiple degrees from fancy colleges or universities, not that this means everything will be easy as seen through Camarata’s personal experience. He and his wife, an experienced speech pathologist, faced challenges trying to get their late-talking son in a mainstream classroom. While they were both experts in this area, they still faced push back from the teachers and clinicians who were supposed to have his son’s best interest at heart. Yikes.

Thus far, I haven’t felt like I’m doing battle. It’s been the opposite as the only challenge has been waiting a pretty normal amount of time from referral to beginning speech therapy. The handbook we received from NY early intervention office clearly outlines parents’ rights such asking for a second evaluation or declining services. For instance, if the occupational therapist found that Xavi had issues with fine or gross motor skills and recommended occupational therapy, I could have declined this without affecting his right to have speech therapy.

Interesting thing to note: Camarata never mentions bilingualism as a possible cause for late-talking in his section on characteristics of late-talking children.

Overall, I recommend reading Late-Talking Children if you want to be better prepared to advocate for your child if he/she needs early intervention services.

Late summer

Xavi’s review: I like this book because there’s a train on the cover. [Seriously, I had to hide the hardcover book when I had it because Xavi would take it away from me. He loves his trains and instantly likes a book more if it includes a picture of a train.]

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Familia

Working mom FOMO

Zoo time

This morning Sean and Xavi came with me to Syracuse. While I attended my meeting they visited the zoo, which was on all the lists of toddler friendly things to do in the city. I knew that was the plan but it didn’t even cross my mind to object because I’d be missing a first. It just seemed like a great activity. Plus, they needed to do something while I was in my meeting.

I didn’t realize until we met up for lunch after the meeting and we talked about the visit that I’d missed Xavi’s first visit to the zoo. I didn’t get to see his face the first time he saw an elephant (he was more interested in some kids and their wagon) and monkeys. I wasn’t there to make him roar at the tiger and try to wake it up. And I wasn’t there to buy some totally cute toy or stuffed animal — that he does not need — in the gift shop.

But Sean was there and he took pictures and told me stories over lunch and the drive home. Xavi had a good time too, which is more important than me being right next to him. We’ll have more opportunities for fun outings.

I’ve always known I’d miss some firsts, but outings like this didn’t cross my mind because up until a few months ago Sean and I were both working outside the home. We both missed his first steps. His babysitter and grandparents witnessed it and took video. A few hours later Sean and I came home from our respective jobs to the gleeful news from my mother-in-law. She was really hoping Xavi would begin walking during her visit. You can imagine her excitement and pride.

This zoo thing, though? It’s like when you see mutual friends hanging out and it bugs you even though you know that’s dumb because even if you were invited you wouldn’t be able to go.

I shouldn’t have any FOMO (fear of missing out — don’t worry I’d never heard of this until one of the students I work with mentioned it) about my husband and son doing fun stuff together. I should just be thankful we can get by with our current family work arrangements and that I have an awesome husband and Xavi has an amazing dad who also makes beautiful pictures and funny videos so I can feel like I was there.

Mini shopper

After lunch we visited the only Trader Joe’s in a 70 mile radius (*tear*). Xavi made a beeline for the mini shopping carts and immediately filled his with the bananas he picked out and my favorite cereal. He’s always fixated on other kids’ toy shopping carts so letting him push the real deal must’ve been exciting. At least I was there for that first and to make sure he didn’t knock down a display or run over anyone’s toes.

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Amigos, Familia

Looking for my friends

A couple weeks ago I sat down and looked at our recent spending to figure out if we could afford to enroll Xavi in preschool part-time. We hadn’t intended to sign him up this soon, but the school is close by and had a last-minute opening. After doing the numbers a few things were clear.

  1. I’m spending a lot on new work clothes. My new department only allows casual clothes on Fridays.
  2. We’re not spending much on gifts anymore.

The latter was just one more reminder of all the birthday parties, showers and weddings we are missing. Put another way, we have no social life.

Friday comes and Sean asks, “What’s going on this weekend?” I used to be able to rattle off a few different options. Even if there wasn’t a formal party coming up, just spending a Saturday or Sunday afternoon at my mom’s house felt like a family gathering thanks to Papá Chepe’a visitor. (A positive side effect of the stroke. It’s brought our family even closer together.)
Now I might say there’s some event I need to do for work but otherwise it’s do chores and hang out as a threesome.

If I was in LA today I’d be in the middle of getting ready to attend my fourth wedding of the summer — pretty average for us — and second of the month. Today, Elizabeth and César will get married. I’ve known Elizabeth since she was a toddler and her family moved to our block. They quickly became close friends. We even visited them in Jalpa, Zacatecas one December and went to Elizabeth’s quinceañera. By chance, I got to see the proposal too. César threw a decoy party complete with delicious tacos and a mariachi. I’m definitely sad to miss this wedding (plus her family throws awesome parties).

Last week I missed David (it feels weird not to call him Oso) and Iris’s wedding. I checked out the photos taken by other friends I met through blogging. I wish it could’ve been like the Carlsbad blogger reunion of early 2012, but alas it’s tough to travel with a toddler cross country.

Earlier in the summer I missed Diana and Carlos’s wedding. I’ve known Diana since 2002 and would’ve loved to spend a weekend in Santa Barbara celebrating with them. Unfortunately, their wedding was on the weekend right before I started my new job and we had already moved.

At least I didn’t miss my cousin Vanny’s wedding in early June. I was lucky my new job was okay with me starting later than their target or I might’ve missed Vanny and Junior’s nuptials.

Of course, I knew I’d be missing events when I decided to move. That was part of the deal since I don’t have an unlimited travel budget and vacation days.

What I didn’t expect was how difficult it is to make friends and how lonely weekends feel just us three. I know I need to give it time. I’ve only been here about 11 weeks and have actually  met a number of kind and friendly people. We say “yes” to the things we are invited to like a picnic for Latinos in the area. We’ve even been to a birthday party.

But still on weekends like this and last I wish I could teleport the three of us to LA for a good party or BBQ, delicious food and amazing people.

For now, you might just find me running around the Ithaca Commons skipping like Sid the Science Kid singing “I’m looking for my friends, I’m looking for you!”

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Familia, Listed

35 notes for my 35th birthday

Monday was my 35th birthday. To commemorate the start of another year of life, I’m giving 35 snippets on life, things I like, and whatever else is too short to really warrant a blog post.


1
The first card I received for my birthday was delivered last Wednesday. It was a butterfly painted in water colors by Papá Chepe. On the back he wrote “feliz cumpleaños” and signed his name. It was perfect. I might’ve cried. Following his stroke, he’s had to relearn to write with his left hand.

2
Sean got me a silly card about farting. Don’t worry, the romance is still there. We just share the same immature sense of humor.

3
Xavi’s card featured Thomas and Friends and had stickers. I let him keep the stickers.

4
For some reason he puts his stickers on his sock-covered feet. He’s silly like that.

Bubble time

5
Sean and Xavi gave me a comal. I forgot the old one on the stove back in LA. Sean said this one had the best reviews. All the other ones “got hot too fast” or “burned [owner’s] tortillas.” I’m baffled that a comal can get a bad review. These people have to be doing it wrong.

6
I used to be a big fan of taking the day off on my birthday and doing something like going to Disneyland. Not this year. It’s the second week of the semester and our office is still pretty busy with welcome events, orientations and the like. Plus, there’s no Disneyland nearby.

7
Family members in LA called to wish me a happy birthday. Again, Papá Chepe’s birthday greetings were most touching. He sang “Las Mañanitas” to me. It was beautiful. (The photo above is from the day we left LA.)

8
I’m a little bummed I wasn’t in LA for my birthday, but not upset to miss the triple-degree heat.

9
No one at work knew it was my birthday.

10
I ordered myself a necklace from MALA by Patty Rodriguez. It hasn’t arrived yet. I’m such a slacker on buying birthday gifts that even when I treat myself the gift is late.

11
Sean has started blogging again. He’s calling his posts about the stay-at-home-dad life S.A.H.D. State of Affairs. Don’t worry. He’s not really sad unless Xavi skips his nap.

12
We’ve started the process of trying to get Xavi in to speech therapy through early intervention. Since we’re in a new state, we basically have to start all over again. I have a lot of feelings about this, but the people we’re working with are quite kind.

13
I finally finished Late-Talking Children: A Symptom or a Stage? by Stephen M. Camarata. It’s a good guide for parents on how to navigate the system. It’s also simultaneously worrisome and reassuring. Of note: Camarata never mentions bilingualism. Thus supporting my doubt that bilingual kids are more likely to have speech delay as has been stated a few times when I’ve written about Xavi’s speech delay.

14
According to Goodreads I’m 4 books behind target to reach my goal (75). Boo. Must download more audiobooks. Or maybe I should count the books I read to Xavi. Note: I love that the librarians put together an easy list of books about trains for kids like Xavi who are obsessed.

15
I found out recently that LA Public Library cards can expire. That’s not cool. At least the university library has ebooks and audiobooks accessible through OverDrive. Yeah, plus one for being at an Ivy League institution!

16
I’ve had a few fish out of water moments. One: At a secondhand kids store I put down my name after purchasing a toddler bed and table for Xavi. I spelled out Mosqueda for the cashier. She tried to pronounce and I corrected her as I’ve done many, many times over my life. Her response to the correct pronunciation? “That’s beautiful.” Rather innocuous, but it was just so strange. I’ve never heard anyone describe my last name as beautiful.

17
Technically I have two last names, but the second is much easier to spell and for ease and not to confuse folks I keep it to Mosqueda. This way I can avoid folks thinking Mosqueda is my middle name and calling me Ms. Campbell. That sounds so weird!

18
Fish out of water moment two: The waitress at a Mexican restaurant in Ithaca was totally confused when Sean ordered mole. Yes, it was on the menu under the chicken dishes. Either she was new and didn’t know the menu very well or she thought it was pronounced like the animal.

19
The tortilla section at WalMart was full of Old El Paso taco shells, taco bowls and other products. There were NO corn tortillas. I nearly cried. I have a tortilla press and can get the masa to make my own, but I’m also kinda lazy.

20
I bought less than a pound of queso fresco for almost $7.50. It doesn’t even taste like queso fresco. Luckily, when my mom visited in late July she brought lots of supplies. I have some frozen queso fresco for emergencies.

21
When people find out I’m from LA they’re really curious about why I’d move to Ithaca. I know the winter is going to be rough, but I came here for the same reason they did, to advance my education/career.

22
They ask a lot about how I like Ithaca. Although I’ve been here two months I haven’t had much of a chance to explore. Plus, I can’t really assess the town when a sizeable chunk of the population was gone for the summer. Xavi and Sean have explored lots of parks and kids activities.

23
I do say that I’m surprised by the noisiness in our neighborhood from traffic and the neighbors across the street. My neighbors in LA were pretty noisy but by the evening it quieted down. Here we still have large trucks or emergency vehicles drive by (we are at a major intersection).

24
We went to a park that was 20 minutes away this weekend. I told Sean, “Oh, it’s far,” after I had mapped it out. Ithaca is messing with my sense of what is close and what is far.

25
I miss our old churches, both St. John Vianney and St. Augustine. I miss the option of an afternoon mass, air conditioning (at least at SJV) and the music.

26
I miss my favorite cereal and yogurt from Trader Joe’s. The nearest location is in Syracuse (which I learned is pronounced like Sara-cuse not Si-ra-cuse). I stocked up on items when we were in Long Island over Xavi’s birthday weekend. My old co-workers also sent me a care package with TJ’s snacks. I miss them too.

27
I missed family and LA most on the day my mom flew back to LA. She visited for ten days in late July and early August. In between flights I texted her that she should get some reast. She said she couldn’t even sleep because she was so sad to leave Xavi. Ugh.

28
While my mom was here we took advantage of the free babysitting. We watched Inside Out. It was entertaining, but nowhere near my favorite Pixar movie. It did make me wonder about Xavi’s core memories that are shaping his identity.

29
Speaking of no longer having access to free babysitting, I was surprised to see Ithaca as one of the top 10 most expensive cities to raise a family in the US. The list came from a report by the Economic Policy Institute on What Families Need to Get By. Here I thought I was moving to an area with a lower cost of living, but not so if you factor in taxes and child care. I recommend doing the side-by-side comparisons.

30
Any disjointed post or photo dump should include recent favorites. I won’t include things I pay for because I’m not about endorsing stuff. First: Super Mamás Podcast – Bricia and Paulina Lopez, two sister and new moms living in LA. Bricia’s little boy is about 4 months old and Paulina has two girls (about 1 and 4, I think). The two sisters speak about striking a balance between using the knowledge they might have gained from their traditional Mexican families along with newer or modern parenting approaches. They have great guests who discuss mom issues I hear less about in other parenting podcasts such as what it’s like to be a teen mom, a singly mom or being a full-time working mom who also has side hustles as an entrepreneur. The podcast is pretty new and they’re only 9 episodes in. However, I’ve already come to look forward to their new episodes. Coincidentally, both sisters delivered their babies at the same hospital where I delivered Xavi. So when they recounted their birth stories I could imagine the same maternity ward. Even better, most of their guests are from LA and they have that LA Chicana/Latina accent I miss.

31
Another Round Podcast with Heben and Tracy – They just make Tuesdays better. I’ve “known” Tracy Clayton through PostBourgie.com and #thatsite for many years. I knew she was hilarious in written form, but her humor and stories are just as entertaining via podcast. Heben Nigatu is also a writer for BuzzFeed and together they make a great team. It probably helps that they have great guests such as Roxane Gay and Lianne La Havas. In the most recent episode they featured small children giving advice on how to be a big brother or sister. I might’ve cried thinking of (a) how awesome it is to have siblings and (b) how I want Xavi to have that experience.

32
Sherman Alexie’s Twitter feed is hilarious. I want to favorite every single tweet. He also started a podcast about a year ago with long-time friend and fellow writer, Jess Walter. On A Tiny Sense of Accomplishment they read works in progress, chat with other writers, answer listener questions about the process and discuss things such as the role of grief in their writing process.

33
OverDrive and public library memberships. OverDrive makes it easy to search for and download eBooks and audiobooks from various public library systems. I rarely buy books these days for myself (Xavi still gets new books) because I just don’t have much space. I borrow from OverDrive through the university and local library system.

34
Radio Ambulante is my favorite podcast in Spanish. Well, it’s the only podcast I listen to in Spanish. It’s hosted by writer Daniel Alarcón and features stores by journalist throughout the public radio world. I need more podcasts in Spanish, but for now Radio Ambulante will do.

35
Turning 35 years old means I’m now of advanced maternal age which could factor in when/if we try for another baby. I didn’t have a rough go of it the first time around at 32 years old, so I can only hope that a few years doesn’t make a big difference.

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